View 2019 Abstracts

Title A Survey of Current Practices by the British Oculoplastic Surgical Society and Recommendations for delivering a sustainable multidisciplinary approach to Thyroid Eye Disease (TED) in the United Kingdom
Submitted by Vickie Lee
Abstract Number 120
Review Result rapid fire presentation
Purpose

The Amsterdam Declaration (2009), the Royal College of Physicians (RCP, 2015) guidance and Thyroid Eye Disease Amsterdam Declaration Implementation Group (TEAMeD-5, 2017) recommendations have the common goal of improving access to high quality care for thyroid eye disease (TED). The TEAMeD-5 recommends that all patients with moderate to severe TED should have access to a multidisciplinary clinic with co-location of Ophthalmology and Endocrinology expertise.

Methods

A 2-stage survey of the full BOPSS membership was conducted to ascertain current practice of existing resources to meet this recommendation between December 2016 to August 2017.

Results

Forty one percent (65/158) responded to Survey 1, and 28 (18%) respondents to Survey 2.
36/55 (55%) of the respondents rated their relationship with their endocrinology colleagues as good. Only 6/28 (21%) of respondents use QOL in current practice. Approximately 60% (39/65) of respondents have an existing multidisciplinary clinic with an endocrinologist. Up to 50% of centres have Joint endocrinology-ophthalmology clinics. Second line immunosuppression provision is patchy. Access to orbital decompression surgery appeared available in most parts of the country.

Conclusion

This survey is a ‘snapshot’ of some aspects of current TED management in the UK and the findings suggest that there is scope for improvement. Based on the above we recommend a framework to enhance more robust collaboration across specialties treating TED. We propose standards endorsed by multi-disciplinary stakeholder societies for early diagnosis, assessment and treatment.


Additional Authors
Last name Initials City / Hospital Department
Lee V Imperial College NHS Trust Western Eye Hospital
Avari P Imperial College NHS Trust Endocrinology
Williams B Medisites Website Support
Perros P Newcastle Upon Tyne Hospitals NHS Foundation Trust Endocrinology
Dayan C Cardiff University NHS Trust, Endocrinology