The TED National Patient Survey, conducted by the Picker Institute is a pivotal initiative designed to capture and amplify the voices of patients, ensuring their lived experiences directly inform improvements in healthcare quality and service delivery.
BOPSS kindly asks for your active support in encouraging your TED patients to participate in the survey and have provided a one-page leaflet to display on your clinic walls or to give to patients.
Other Principal Stakeholders Involved
- Picker Institute Europe: As the independent not-for-profit organisation leading the TED National Patient Survey, Picker Institute Europe ensures that the survey remains unbiased and solely focused on patient interests. Their stewardship is fundamental in collecting authentic patient perspectives and translating them into actionable insights.
- TEDct (Thyroid Eye Disease Charitable Trust): TEDct is closely involved as a core stakeholder. TEDct plays a vital role in representing the unique needs and concerns of individuals living with Thyroid Eye Disease. Through advocacy, patient engagement, and expert input, TEDct ensures that the survey addresses the realities faced by this patient community, making outcomes more meaningful and targeted.
- British Thyroid Foundation: The British Thyroid Foundation is another key partner, offering its deep understanding of thyroid-related conditions and patient networks.
- Amgen: Amgen provides funding support for the survey, helping to facilitate its implementation and reach. They are not involved in the survey’s design or analysis; their financial backing enables the project to operate on a national scale.
Please note:
The link on the leaflet for the “online information sheet” is https://info.picker.org/amgen-recruitment
The link to the actual patient survey on the QR code is https://picker.fra1.qualtrics.com/jfe/form/SV_3JCZh9Pi467FITI?Q_CHL
